Resources


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We have a wide range of resources for you to use, including leaflets, best practice guides and contact cards to give to your newly diagnosed patients.

These can be ordered by emailing info@dystonia.org.uk or calling 0845 458 6211. To view PDFs of the leaflets / booklets please click on the image.

Title Picture (click for PDF of contents) Description

Good Practice Guide

Guide to_good_practice

A Guide to Good Practice for Health and Social Care Professionals. Covers all forms of dystonia and treatments.

41 page A4 book

email info@dystonia.org.uk to order

Dystonia Explained

Dystonia Explained

General overview of dystonia.

8 page A5 booklet

Neck Dystonia  Neck dystonia

Leaflet for people affected by neck dystonia (cervical dystonia or spasmodic torticollis). Describes the condition, its symptoms, causes and treatments.

3 Fold Leaflet

Eye Dystonia  Blepharospasm

Leaflet for people affected by eye dystonia (Blepharospasm). Describes the condition, its symptoms, treatments and causes.

3 fold leaflet

Focal Hand Dystonia  Focal hand dystonia

Leaflet for people with writers cramp and hand dystonias

3 fold leaflet

Paroxysmal Dystonia alt

Leaflet for people with paroxysmal dystonia - a group of rare conditions where attacks can occur, in between which there are no symptoms

3 Fold leaflet

Medication Induced Dystonia Tardive dystonia

Booklet for people who have dystonia as a result of certain medications.

8 page booklet

Voice Dystonia alt

Leaflet for people living with voice (laryngeal) dystonia, describing symptoms, causes, condition management and treatments.

3 fold leaflet

Generalised Dystonia  Generalised dystonia

Leaflet for people living with generalised (early onset) dystonia

3 fold leaflet

Myoclonus

alt

Leaflet for people with myoclonus + dystonia together

3 fold leaflet

Oromandibular Dystonia  Oromandibular dystonia

Leaflet for people with oromandibular dystonia - dystonia affecting the mouth, tongue and jaw

3 fold leaflet

Hemifacial Spasm  Hemifacial spasm

Leaflet for people living with Hemifacial Spasm - dystonia affecting muscles on one side of the face

3 fold leaflet

Dopa-responsive dystonia Dopa responsive dystonia

Leaflet for people with dopa-responsive dystonia - dystonia which responds to levodopa medication.

3 fold leaflet

Segmental & multifocal dystonia multofocal and segmental

Leaflet explaining segmental and mutifocal dystonias

3 fold leaflet

Dystonic Tremor tremor

Leaflet explaining dystonic tremor

3 fold leaflet

Functional dystonia functional

Leaflet explaining Functional dystonia

3 fold leaflet

Botulinum toxin treatment
 Botulinum toxin treatment

Leaflet for people who are having botulinum toxin injections or who are considering botulinum toxin injections for dystonia

3 fold leaflet

When botulinum toxin injections are not working  When botulinum toxin injections are not working

Leaflet for when botulinum toxin injections are not working

3 fold leaflet

Deep Brain Stimulation alt

Booklet for people living with dystonia who are undergoing or considering Deep Brain Stimulation surgery

gatefold leaflet

Drugs used for Dystonia  Drugs used for dystonia

A short guide to drugs that are often used to provide relief from the symptoms of dystonia

3 fold leaflet

Dystonia & Genetics  Dystonia and genetics

Leaflet explaining the genetics of dystonia and known inherited forms of dystonia.

3 fold leaflet

Dystonia & Pain pain

Leaflet about pain and dystonia

3 fold leaflet

Dystonia & Mental Health mental health

Leaflet about the relationship between dystonia and mental health

3 fold leaflet

Carers & dystonia  Carers and dystonia

Leaflet for carers of people with dystonia

3 fold leaflet

Caring for a child with dystonia  Caring for a child with dystonia

A guide for parents and carers of children with dystonia

3 fold leaflet

Helpline Card alt

2 sided "Business Card" to hand to your newly diagnosed patients - includes details of The Dystonia Society Helpline and Website and other support services available from the Dystonia Society.

Image shows front and back view

TO ORDER LEAFLETS: email info@dystonia.org.uk or call 020 7793 3651

 

 

 

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