The Dystonia Society

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Resources for Professionals

We have a wide range of resources for you to use, including leaflets, best practice guides and contact cards to give to your newly diagnosed patients.

These can be ordered by emailing info@dystonia.org.uk or calling 0845 458 6211. To view PDFs of the leaflets / booklets please click on the image.

Title Picture (click for PDF of contents) Description

Good Practice Guide

Guide to_good_practice

A Guide to Good Practice for Health and Social Care Professionals. Covers all forms of dystonia and treatments.

41 page A4 book

email info@dystonia.org.uk to order

Dystonia Explained

Dystonia Explained

General overview of dystonia.

8 page A5 booklet

Neck Dystonia  Neck dystonia

Leaflet for people affected by neck dystonia (cervical dystonia or spasmodic torticollis). Describes the condition, its symptoms, causes and treatments.

3 Fold Leaflet

Eye Dystonia  Blepharospasm

Leaflet for people affected by eye dystonia (Blepharospasm). Describes the condition, its symptoms, treatments and causes.

3 fold leaflet

Focal Hand Dystonia  Focal hand dystonia

Leaflet for people with writers cramp and hand dystonias

3 fold leaflet

Paroxysmal Dystonia alt

Leaflet for people with paroxysmal dystonia - a group of rare conditions where attacks can occur, in between which there are no symptoms

3 Fold leaflet

Medication Induced Dystonia alt

Booklet for people who have dystonia as a result of certain medications.

8 page booklet

Voice Dystonia alt

Leaflet for people living with voice (laryngeal) dystonia, describing symptoms, causes, condition management and treatments.

3 fold leaflet

Generalised Dystonia  Generalised dystonia

Leaflet for people living with generalised (early onset) dystonia

3 fold leaflet

Myoclonus

alt

Leaflet for people with myoclonus + dystonia together

3 fold leaflet

Oromandibular Dystonia  Oromandibular dystonia

Leaflet for people with oromandibular dystonia - dystonia affecting the mouth, tongue and jaw

3 fold leaflet

Hemifacial Spasm  Hemifacial spasm

Leaflet for people living with Hemifacial Spasm - dystonia affecting muscles on one side of the face

3 fold leaflet

Dopa-responsive dystonia Dopa responsive dystonia

Leaflet for people with dopa-responsive dystonia - dystonia which responds to   levodopa medication.

3 fold leaflet

Botulinum toxin treatment
 Botulinum toxin treatment

Leaflet for people who are having botulinum toxin injections or who are considering botulinum toxin injections for dystonia

3 fold leaflet

When botulinum toxin injections are not working  When botulinum toxin injections are not working

Leaflet for when botulinum toxin injections are not working

3 fold leaflet

Deep Brain Stimulation alt

Booklet for people living with dystonia who are undergoing or considering Deep Brain Stimulation surgery

8 page booklet

Drugs used for Dystonia  Drugs used for dystonia

A short guide to drugs that are often used to provide relief from the symptoms of dystonia

3 fold leaflet

Dystonia & Genetics  Dystonia and genetics

Leaflet explaining the genetics of dystonia and known inherited forms of dystonia.

3 fold leaflet

Carers & dystonia  Carers and dystonia

Leaflet for carers of people with dystonia

3 fold leaflet

Caring for a child with dystonia  Caring for a child with dystonia

A guide for parents and carers of children with dystonia

3 fold leaflet

Helpline Card alt

2 sided "Business Card" to hand to your newly diagnosed patients - includes details of The Dystonia Society Helpline and Website and other support services available from the Dystonia Society.

Image shows front and back view

TO ORDER LEAFLETS: email info@dystonia.org.uk or call 0845 458 6211 

 

 

 

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