Resources for carers of children


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Useful resources for carers and parents of children with dystonia

AbilityNet

AbilityNet is a national charity helping disabled adults and children to use computers and the internet by adapting and adjusting their technology. Special expertise ensures that whatever the child’s age, health condition, disability or situation you will find exactly the right way to adapt or adjust ICT to make it easier to use.

General enquiries:
Freephone 0800 269545 or 01926 312847 (minicom accessible)
Email: enquiries@abilitynet.org.uk
Website www.abilitynet.org.uk

ACE Centre (Aiding Communication in Education)

ACE Centre offers help and support for children who have complex physical and communication difficulties, and for their parents, carers or therapists

ACE Centre Advisory Trust
92 Windmill Road
Headington
Oxford
Oxfordshire OX3 7DR
Tel 01865 759 800
Fax 01865 759 810
Email address info@ace-centre.org.uk
Website www.ace-centre.org.uk

AIDIS Trust

The AIDIS trust was founded in 1975 to help disabled people communicate more easily and effectively through technology.

London Office (Administration Centre):
Floor 7, 3 London Wall Buildings
London Wall
London
EC2M 5PD

E-mail:     support@aidis.org
Telephone:     Freephone Number: 0808 800 0009 (for all enquiries, advice and support)
Website www.aidis.org

C P Sport

C P Sport promotes and seeks to increase sport and physical recreational opportunities for people with a disability. They provide sporting opportunities to individuals of all ages and at all levels from the recreational right through to paralympic competition.

Sporting activities offer fantastic health benefits to people with disabilities but it is the social advantages that are perhaps the most important. Through their activities with C P Sport, individuals grow in confidence and build life-long friendships as they compete and socialise with others who share the same difficulties as themselves in an environment where they are no longer made to feel different from their peers.

Telephone: 0115 925 7027

Email: info@cpsport.org

Website: www.cpsport.org

FAST (Foundation for Assistive Technology)

As a small, independent organisation FAST relies on working collaboratively with other members of the Assistive Technology community, across statutory, voluntary and private sectors to bring innovative products to market and to improve services for disabled and older people.

FAST

302 Tower Bridge Business Centre
46-48 East Smithfield
London E1W 1AW

Tel: 0300 330 1430
Fax: 020 7709 2068
Email: info@fastuk.org

Website www.fastuk.org

ICAN

I CAN works to support the development of speech, language and communication skills in all children with a special focus on those who find this hard: children with speech, language and communication needs.
Post to: I CAN
8 Wakley Street
London EC1V 7QE
Visit: ICAN Unit 31,
Angel Gate (Gate 5)
Goswell Road
London EC1V 2PT
Switchboard 0845 225 4071 or 020 7843 2510
Information 0845 225 4073 or 020 7843 2552
Fax: 0845 225 4072 or 020 7843 2569
Email info@ican.org.uk
Website www.ican.org.uk

JISC TechDis

The JISC TechDis Service aims to be the leading educational advisory service, working across the UK, in the fields of accessibility and inclusion. Their mission is to support the education sector in achieving greater accessibility and inclusion by stimulating innovation and providing expert advice and guidance on disability and technology.
JISC TechDis
C/O The Higher Education Academy Building
Innovation Way
York Science Park
York YO10 5BR
Tel +44 (0)1904 717580
Fax +44 (0)1904 717505
Email helpdesk@techdis.ac.uk
Website www.techdis.ac.uk

LEAD SCOTLAND

Lead Scotland, (Specialists in Linking Education and Disability), is a voluntary organisation set up to widen access to learning for disabled young people and adults and carers across Scotland.
Lead Scotland
Princes House
5 Shandwick Place
Edinburgh EH2 4RG
Tel 0131 228 9441
Textphone users (18001) 0131 228 9441
Fax 0131 229 6941
Email enquiries@lead.org.uk
Website www.lead.org.uk

Living made easy for children

Living made easy is an impartial advice and information website about daily living equipment and other aspects of independent living. It has been developed by the Disabled Living Foundation (DLF), a national charity with 40 years' experience in providing independent advice about independent living for disabled adults and children, older people, their carers and families. DLF is a founder member of the Information Standard, a certification scheme for health and social care information.
Disabled Living Foundation
380-384 Harrow Road
London W9 2HU
Helpline 0845 130 9177
Textphone 020 7432 8009
Email info@dlf.org.uk
Website www.livingmadeeasy.org.uk

The Family Fund

Helping families in England, Northern Ireland, Scotland and Wales the Family Fund helps families with disabled children and young people aged 17 and under to have choices and the opportunity to enjoy ordinary life. They give grants for things that make life easier and more enjoyable for the disabled child, young person and their family, such as washing machines, driving lessons, computers and holidays.
Family Fund
4 Alpha Court
Monks Cross Drive
York YO32 9WN

Tel 08449 744 099
Textphone 01904 658085

Email info@familyfund.org.uk
Website www.familyfund.org.uk

The Sequal Trust

The Sequal Trust is a registered charity covering the whole of the UK. The main objective is to provide relief to children and adults who are severely disabled and depend on electronic communication aids and adaptations to alleviate their problems. The Sequal Trust is membership based and open to people of all ages with speech, movement and learning difficulties.
The Sequal Trust
3 Ploughman's Corner
Wharf Road
Ellesmere
Shropshire SY12 0EJ
Tel 01691 624 222
Email: info@thesequaltrust.org.uk
Website www.thesequaltrust.org.uk

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