The internet can be an excellent tool to access information. However it can also leave you feeling swamped and in a state of information overload.
In order to try and help you source reliable information, we suggestions a number of web sites that other members have found helpful.
Dystonia in general
• www.wemove.com (US organisation). Arguably the most extensive site for neurological conditions on the web. It provides lots of information on all aspects of dystonia (and other movement disorders).
• www.dystonia-foundation.org (US organisation) is the website of the Dystonia Medical Research Foundation (DMRF) of the USA which is the largest dystonia membership organisation in the US.
Sites dedicated to specific forms of Dystonia
• www.torticollis.org (US organisation) this is a site dedicated to torticollis with its own message board.
• www.drdcentral.com (US organisation) is a site dedicated to Dopa-Responsive Dystonia.
• www.bleparospasm.org (US organisation) Site run by the Benign Essential Blepharospasm Research Foundation.
• www.neural.org.uk The Neurological alliance - an unbrella body of UK patient advocacy organisations
• www.psychotherapy.org.uk is the website of the UKCP, a professional body for counselling and psychotherapy and a good reference point for anyone seeking information on counselling and psychotherapy in the United Kingdom. The website can help you locate a counselor or psychotherapist in your area.
• http://www.bacp.co.uk as above, the BACP is a professional body for counselling and psychotherapy in the UK and can help you locate a counselor in your area.
Physiotherapy and Osteopathy
• www.csp.org.uk CSP is a chartered association of physiotherapists, this website can provide you with information about practitioners in your area with an interest and experience of working with people with neurological conditions.
• www.osteopathy.org.uk The general osteopathic association can provide you with information about practitioners in your area with an interest and experience of working with people with neurological conditions.
Some other useful sites include:
• www.cafamily.org.uk Provides advice, information and support to the parents of all disabled children - no matter what their disability or health condition.
A word of caution: These sites will hopefully provide you with useful information. However, they cannot answer specific questions about your situation. There is no substitute for the information provided by a physician who is well acquainted with your own particular circumstances.