To find out more, please click on the links below.


About the group   Group Contact
Photos   Future Meeting Dates


About the group

This group started in 2013 and hold meetings every two months, and allows members an opportunity to share their experiences of living with dystonia, their current treatments, concerns, tips and tricks to dealing with dystonia amongst other things.

The meetings are held in a warm, comfortable and friendly environment, with refreshments available and good days…biscuits!

We welcome speakers from many walks of life, and thus far have had medical and care team professionals, right through to family members telling their dystonia journey in an effort to share information and support one another.

Fancy coming along? Just call our group contact for details of upcoming meeting dates, or check this page for updates throughout the year… All welcome, even bring a friend if it helps, we assure you a warm welcome.

If you would like to know more please get in touch with the group contact.


Future Meeting Dates
Date Time Location Other Information
Meets every two months. tbc


If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.


Group Contact
Group Contact Name: Gavin Hamilton
Group Contact Number: 0845 899 1049
Group Contact Email:

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or 


Edinburgh Group
Edinburgh Group