To find out more, please click on the links below.


About the group   Group Contact
Photos   Future Meeting Dates


About the group

Three groups came together in 2011 to work co-operatively as one group: London Central (set up 1988); London South West (set up 1996) and Surrey (set up 2004/5).

The group meets 3/4 times a year to give members an opportunity to get together to hear a speaker and for support.  Refreshments are provided and there is time for a chat and a raffle.  Refreshments are provided by volunteers and a small charge is made that helps to cover the cost of the venue.

This group has a number of volunteers who form the committee and include a treasurer, chairperson and secretary.  The committee organises and runs the group meetings.  There are additional helpers who help with taking donations at the door, helping with the raffle and fundraising.  A further helper ensures there are leaflets at the hospital.

The group also meets for additional social events such as a visit to Kew Gardens and Christmas lunch.  This group usually has between 25 and 35 people that attend the meetings.

If you would like to know more please get in touch with the group contact.


Future Meeting Dates
Date Time Location Other Information
16/12/2017 12:30 Brown's Bar & Brasserie, 82-84 St Martin's Lane, WC2N 4AG Christmas Lunch
20/01/2018 13:00 Dishoom Indian Restaurant, King's Crosss New Year Lunch
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.


Group Contact
Group Contact Name:

Ian Boddington (London & London SW)

Margaret Lee (London & London SW)

Linda Barns (Surrey)

Group Contact Number:

0845 899 7127 (London & London SW)

0845 899 1058 (London & London SW)

0845 899 7136 (Surrey)

Group Contact Email:

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or 


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