Groups


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To find out more, please click on the links below.

 

About the group   Group Contact
     
Photos   Future Meeting Dates

 

About the group
info available soon
If you would like to know more please get in touch with the group contact.

 

Future Meeting Dates
Date Time Location Other Information
No future meeting dates available at present.
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.

 

Group Contact
Group Contact Name: Tim Gannicliffe
Group Contact Number: 0845 899 0610
Group Contact Email: info@dystonia.org.uk

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or support@dystonia.org.uk 

 

Photos
There are currently no photos available.

 To find out more, please click on the links below.

 

About the group   Group Contact
     
Photos   Future Meeting Dates

 

About the group
This group meets every 3 months for lunch at the Toby Carvery in Newcastle upon Tyne. The support group has been established for around 8 years but many of the members have known each other for longer. Many of them met whilst attending hospital for treatment of their dystonia. The group has been growing as more people are being diagnosed. Great friendships have grown from the support group and many keep in touch daily. Members travel from Carlisle, Northumberland, Hexham, Gateshead, North Tyneside, Dubai, and America.
The group also put leaflets in the clinics at Walkerpark Hospital and the outreach clinics. Raising awareness of dystonia is important to them and so is fundraising but their main concern as a group is supporting and helping people who have dystonia now. 
If you would like to know more please get in touch with the group contact.

 

Future Meeting Dates
Date Time Location Other Information
07/12/2017 11:00 for a 12noon lunch The Toby, Kingston Park, Newcastle upon Tyne Christmas meeting.
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.

 

Group Contact
Group Contact Name: Pauline Dawson (phone) & Graham Huntley (email)
Group Contact Number: 0845 899 1050
Group Contact Email: dystoniane@gmail.com

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or support@dystonia.org.uk 

 

Photos
There are currently no photos available.

 To find out more, please click on the links below.

 

About the group   Group Contact
     
Photos   Future Meeting Dates

 

About the group
The group will meet at the Mercia MS Therapy Centre in Coventry and is being organised by Terina Fellows. The group aims to offer an opportunity to meet others affected by dystonia in the local area, to offer support to each other and share experiences.
If you would like to know more please get in touch with the group contact.

 

Future Meeting Dates
Date Time Location Other Information
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.

 

Group Contact
Group Contact Name: Terina Fellows
Group Contact Number: 0845 899 1052
Group Contact Email: coventrydystoniagp@yahoo.com

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or support@dystonia.org.uk 

 

Photos
There are currently no photos available.

 To find out more, please click on the links below.

 

About the group   Group Contact
     
Photos   Future Meeting Dates

 

About the group
This group is being organised by Susan Hutchinson and will meet in a local cafe. The group will be a fairly informal to enable members to get to know fellow local members and to discuss how the group can develop in order to provide support and raise awareness. The group aims to be a place to get together with others affected by dystonia and an opportunity to exchange ideas and share experiences.
If you would like to know more please get in touch with the group contact.

 

Future Meeting Dates
Date Time Location Other Information
04/12/2017 13:00 Bull and Sun, Bridlington Christmas Lunch, booking required.
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.

 

Group Contact
Group Contact Name: Susan Hutchinson
Group Contact Number: 0845 899 1051
Group Contact Email: eastyorksdystoniasocietygroup@gmail.com

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or support@dystonia.org.uk 

 

Photos
There are currently no photos available.

 To find out more, please click on the links below.

 

About the group   Group Contact
     
Photos   Future Meeting Dates

 

About the group
This is a group that aims to offer “refreshment & chat” get togethers in Taunton for those living in and around Somerset.
The meetings will be a friendly opportunity to meet others affected by dystonia in a local cafe on a regular basis.  The meetings will be an opportunity for people to share experiences, tips and ideas.
As these meetings are very informal drop ins Kate will be there from the publicised start time for each meeting to ensure a warm welcome and will wait for about 30 minutes to see if anyone else is going to be there, after this time if no-one has arrived she will leave.  Please call the co-ordinator Kate for more details and to let her know if you plan to attend, especially if you think you might be a little bit late.
If you would like to know more please get in touch with the group contact.

 

Future Meeting Dates
Date Time Location Other Information
11/11/2017 14:30 The Boat House, Riverside Place, St. James Street, TA1 1JH  
If you are new to this group, or you would like to know more about their meetings, please get in touch with the group contact.

 

Group Contact
Group Contact Name: Kate Forsyth
Group Contact Number: 0845 899 1057
Group Contact Email: info@dystonia.org.uk

Please remember all our support groups are organised and run by volunteers. Please bear this in mind when getting in touch with the group contact.

Calls cost 5p per minute plus your phone company's access charge.

Please note the above contact details are for information about the local group only. If you want information about dystonia and its treatment or to discuss how dystonia is making you feel then you should contact the Dystonia Society helpline on 0845 458 6322 (Calls cost 3p per minute plus your phone company's access charge.) or support@dystonia.org.uk

 

Photos
There are currently no photos available.

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