Have you been unfairly refused benefits, such as the DLA?
Has your employer refused to adapt for your condition?
Have you been refused the specialist treatments that you need?
Sadly, these situations are becoming more and more common and over the past two years our Helpline team (0845 458 6322) have been receiving more and more calls from people who are struggling to access the support they need.
As a result we have set up a new Dystonia Advocacy Service to run alongside the Helpline. The new Advocacy Service aims to stand up for people living with dystonia and act on behalf of those individuals who are struggling to access the support they need.
Angie Brown, the Helpline Manager, will be running the service two days each week, empowering individuals to get the support they are entited to by:
If you need the support of the Advocacy Service please contact the Helpline on 0845 899 1040 or 020 7793 3657
The Dystonia Society operates a confidentiality policy to ensure information provided to us will be used solely for the purpose for which it is given and be kept confidential within the organisation. However, the Society may disclose information to the appropriate authorities without permission where it has a reasonable belief that there is concern that the health and safety or welfare of an individual is at risk. Click here to see the confidentiality policy.