The Dystonia Society

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Support Services

Whether you have been diagnosed with dystonia yourself, or you know someone who has, our services can make a real difference to you.

Helpline2 copy

Our telephone Helpline is available weekdays from 10am to 4pm to members, non-members and healthcare professionals.

Call 0845 458 6322 or 020 7793 3658 or email support@dystonia.org.uk

Advocacy poss_copy

Our Advocacy Service can make your voice heard if you are being turned down for treatments, benefits or employment support

Forum copy

This is your chance to view or join in discussions about anything to do with living with dystonia

Support Groups_copy

Find out about Support Groups in your area

Coping copy

Find out about self-help techniques, sensory tricks, pain management and complementary medicines to make living with dystonia easier

Benefits and_Rights2_copy Find out about your rights and information on statutory benefits
Parents and_Carers2_copy Information for parents or carers of children living with dystonia
Living with_Dystonia_Events_copy Attend a Living with Dystonia Event in your area to learn more and meet others
Scotland copy Information on support available in Scotland
internet resources_copy Useful information and websites
Blogs copy Find out about other peoples experiences
other resources_copy Other resources - Books etc.
Videos copy Videos about dystonia

One to one

One to One support enables people affected by dystonia to be linked by phone to volunteers who are well placed to provide informal, positive support

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