Running Events









Your Event


Join the Team and Run for Dystonia!


Get in touch by calling 0845 803 1004 or by emailing - we're sure to have the run to suit you!

Download one of our amazing Fundraising Packs here

* Calls to the above number cost 3p per minute  


Great North Run - 11th Septmber 2016 

Want to take on the world’s greatest half marathon? Well now’s your chance!

Great North Run 2016

Setting off in the heart of Newcastle, the course takes on some the iconic sites of the city including the Tyne Bridge and then finishes in the coastal town of South Shields. With over 56,000 people taking on this event, the atmosphere is like no other and definitely an event you’ll want to be part of!

Although we've now awarded all of our places, not to worry, you can still run for The Dystonia Society if you have a ballot place! Let the fundraising team know and we will make sure you are registered and ready to join ‘Team Dystonia’ and we'll kit you out with a Dystonia running vest and materials to assist your training and fundraising.

Email: or call: 0845 8031004


* Calls to the above number cost 3p per minute  


Big Fun Run Crystal Palace - 29th October 2016

Eye Dystonia (blepharospasm) Research Fundraising Event 


We’ve teamed up with eye-health charity Fight for Sight to fund a unique research project into eye dystonia (also known as blepharospasm). Fight for Sight have offered to ‘match fund’ half of the £15,000 research pot, which means that in effect, everything you raise could be doubled! So we need to make a big effort to raise as much as we can.

That’s why we need runners for the upcoming Crystal Palace Big Fun Run to help us raise an extra £2,500 to take us over the fundraising finish line!

To add an eye dystonia awareness twist to the event and to encourage extra sponsorship, what about participating in pairs and taking it in turns to run blindfolded?  

If you’d like to get involved with this event in aid of eye dystonia research. Please get in touch with the fundraising team by emailing us at

You can also sign up to this event on the Big Fun Run website – but don’t forget to let us know so we can help you fundraise! And send you some Dystonia Society goodies!


London Super Nova 5K Run - Saturday 1st April 2017


Get the whole family involved with this fantastic fluorescent 5K in the beautiful Queen Elizabeth Olympic Park in London. What’s this though - it takes place when it’s dark!?

Yep that’s right, and it really makes this a stellar event! So dig out your most reflective clothing and grab everything and anything that glows or flashes and get ready to shine and gleam for The Dystonia Society.

There’s no stress, no time limits - just friends and family spending an evening together doing something a little different but a lot of fun! Fancy dress is a big part of this event and brilliantly brightens up the night.


BMW Berlin Marathon -25th September 2016



From its humble beginnings in 1974 with just 286 athletes on a minor road in Charlottenburg. The Berlin Marathon has evolved into a phenomenal race with over 40,000 runners (plus one million spectators!) and cemented its place as one of the top marathons in the world – no surprise considering you get to journey through one of Europe’s most exciting capitals, running past countless historic sights and landmarks like the Reichstag, the Berlin TV Tower, the Konzerthaus Berlin, and Potsdamer Platz to name a few, and of course the bedazzling Brandenburg Gate.

This is a truly world-class marathon and a great way to absorb Belin’s beauty. Not only that but it has a tremendous fast and flat course das boot to boot so is great if you’re chasing that personal best.  

If you have a ballot place already, why not run for as? We’ll be able to support you the entire way and you’ll also get one of our wonderful running vests to wear with pride.

Check out the website here:



Alternatively, if you've already been awarded a place in another event or would like to take part in one that we haven't advertised. Just give us a call on 0845 803 1004 or email and we can support you through it and help with your fundraising! 


* Calls to the above number cost 3p per minute