What an amazing year our Fundraisers have had! Our supporters have shown outstanding dedication and have completed some amazing feats whilst raising vital funds and awareness!
Fundraiser of the Month
Starting in November 2012, each month we will celebrate a fundraiser (or a group of fundraisers) for their achievements in raising funds to support people with dystonia. Each and everyone of our fundraisers do amazing work in raising money and awareness for the Dystonia Society and we really appreciate all your hard work.
Read about our Fundraisers of the Month
Dragon Boat
Simon Herbert's friends organised his stag do to raise money for the Dystonia Society in memory of his mum Lynda who had dystonia. Simon's friends and family made up a large team of rowers for the Nottingham Dragon Boat Challenge. It was an outstanding success, raising an amazing £4,000!
Take on a challenge for the Dystonia Society!

Frank finishes his fantastic feat!
Renowned muscisian and Professor of Horn, Frank Lloyd took on the JOGLE challenge in August 2012, cycling 1,023 miles from John O'Groats in Scotland to Lands End in Cornwall. He raised £3,575 for the Dystonia Society and cycled for 19 days in this greuling challenge. There were double celebrations on arival at Lands End as Frank arrived on his 60th Birthday with over 30 people cheering his arrival!
Congratulations Frank from all at the Dystonia Society, we hope you had a great birthday!
Why not get on your bike for the Dystonia Society?
High Tea
The Oxford Dystonia Society Group held a Tea Party to raise funds and awareness for the Dystonia Society. Lorraine Jackson, the group co-ordinator hosted their tea party at a local restuarant and everyone dressed to impress at this very stylish affair. All together our tea parties raised over £5,000 in 2012.
Hold your own tea party in 2013!
Susan Thornton organised a Fun Day event at Whitefriars shopping centre! The event was a great success and attracted many families. The children were very keen to get on the bouncy castle and many people picked up leaflets on dystonia. Over £200 was raised and it was a great awareness raising event. Suzanne also took part in the Bupa London 10K in May.
Fancy organising your own event?
Georgie's personal best!
10 year old Georgie took part in the Derby 5K because her music teacher, Annika Morris, has dystonia. Little did she know that when Annika found out about the run, she decided to join in too!
Georgie said about her run, "We came around the last corner and saw the finish line, woohoo! I was very happy to see it because we'd come a long way. We weren't last but we made a new personal best of 45 minutes for 5K" Georgie and her team raised a fantastic £480 in total!
Why not take part in our 5K event in Crystal Palace Park?
Painting the town red!

TeamDystonia were out in force at the Santa Run in Greenwich Park on December 9th! Twenty Santas took part either in the 5K or the 10K for the Dystonia Society and a jolly time was had by all. It was an international affair with runners from the UK, Finland and Germany! A big thank you to everyone who took part, over £1,400 was raised altogether.
Why not follow follow their lead and take part in a running or walking event for dystonia?
We are building up our amazing team of Fundraisers for 2013/14 and have our largest ever Marathon Teams in place for London and Brighton! There are lots of ways you can get involved in Fundraising - including Cycling, Running, Swimming and of course the Extreme Challenges. We are keen to assist with finding the right event, in the right place for YOU!
Join the team today and email Ann Dedman ann@dystonia.org.uk or ring her on 0845 803 1004
If thats whet your appetite, maybe a cup of tea is in order... why not hold a Tea Party for Dystonia?!
In May we are asking supporters to hold a Charity Tea Party to raise funds for the Dystonia Society!
Download your Tea Party fundraising pack
Call or Email Ann Dedman for more details - 0845 803 1004 / ann@dystonia.org.uk




