Organise an event








Your event


Organising your own Fundraising Event is a great way to support our work - it's fun, rewarding and is a great opportunity to do something new, meet new people, make new friends and support a great cause.

If you are interested in organising your own event call Ann on 0845 803 1004 or email to discuss your ideas and request a fundraising pack 

Tea Party for Dystonia 

Join us in whatever way you can - whether that means holding your own Tea Party for Dystonia, helping out at your local Tea Party, baking some delicious cakes for a Tea Party (there are some great recipes in the Fundraising Pack), or supporting a Dystonia Tea Party by attending and buying some tea and cake!

Exclusive for 2015 - Great British Bake Off's Nancy Birtwhistle has writen a delicious Morello Cherry and Almond recipe for our Tea Party Fundraisers!

Recycling for Dystonia 

We can now raise funds from recycling unwanted watches and jewellery (even odd and broken pieces) and also any foreign or old UK banknotes, mobile phones or cameras. All of these items can generate funds for the Society, at no cost to you or us, through Recycling for Good Causes. A recycling freepost label can be download here or else please contact the office and we will send one to you.

Dress for Dystonia 2015

Whether its last year's cocktail dress or a bag you never use, our wardrobes often get cluttered up by items we just do not need. Instead of throwing them out this time, why don't you throw a clothes swapping party in aid of the Dystonia Society? 

A fun, environmentall friendly way to update your wardrobe whilst raising funds! You can request a Dress for Dystonia 2014 pack from the office, or call the fundraising team on 02077933654

Carvery Cross Fit Crawl

Dustin, Toby and Neil completed a unique self-organised event in 2013. They ran 7 miles, completing 20 burpees every half mile (that's 280 in total!) and having a Cavery dinner in the middle of the event.

Many thanks to Dustin, Neil and Toby for taking on this challenge.


Golf Extravaganza!

Jamie Lee Davison and his fellow golfers raised £1702 by playing five rounds of golf on the longest day of the year. They commenced play at 3.30am and played until sunset, walking a distance of 43 miles!

They are repeating the event this year for the 3rd year - attempting 100 holes of golf in one day! This challenge will begin at 3.30am and continue till sunset.

A special thankyou to Houghton le Spring Golf Club who kindly donated the use of their facilities to the team.

Trekking to Success


Many of our fundraisers choose to go on challenging treks across the globe to raise funds for us.

Ian Rutherford has trekked Mt Kilimanjaro in Tanzania, Matchu Pichu in Peru, Mount Hillaby in Barbados in 2013; and is planning many more in 2014 in aid of The Dystonia Society and his daughter.

Annabel Evans climbed Mount Kilimanjaro on her 40th birthday, raising more than £1,500 for The Dystonia Society




Hair Cut for Dystonia

When Christine Bond made the decision to donate her hair to the Little Princesses charitywhich makes wigs for children with cancer, she used the opportunity to raise funds for the Dystonia Society at the same time; raising a fantastic £600!

The hairdressing salon, ‘Just Cuts’ in Downham Market kindly cut Christine’s hair for free, giving her a number 8 shave which left her hair about 1inch long. This is an amazingly brave event, and we thank Christine, Just Cuts and all who sponsored her for raising such a brilliant amount.

Cheese and Wine Event!

Gilly Marshall and her family hosted a cheese and wine event in their local village of Blyton, raising a fantastic £2810!

The Ice Cream Parlour donated their venue for the occasion, along with tea, coffee and cheese. Family and friends donated food and drink and local businesses donated many raffle prizes, making the evening a great success!

Many thanks to Gilly, her sister Diane, and her nieces Linzie and Carly who all did an incredible amount of work towards this fantastic event.

Oddfellows 2013-05-11_small

Oddfellows - Charity of the Year

Oddfellows made the Dystonia Society Charity of the Year for 2012 and have raised £5,000 with many events including a tea party, gala dinner and raffles.

Many thanks to Colin Magee, Dystonia Society member, and his wife Pam, Provincial Grandmaster of the St Mary's and Dartford district order of the Oddfellows, for their continued support.

The Brady Family of Northern Ireland have raised more than £1,300 through a whole range of varied and innovative fundraising events.

Last year they got together a team of arond 20 friends (left) to take part in their local 10k run!


If you shop online then please remember to shop through: or

These websites are an easy way to raise funds for the Dystonia Society, as when you make a purchase from an affiliated webpage the company will make a donation to us. There's no extra cost to you either you or us. 


Take a look at some of our Fundraising Stars, and if that whets your appetite, contact Ann - 0845 803 1004 / to discuss your ideas!

If organising your own event doesn't take your fancy, why not take part in one of our organised events?

What to do next...

Take a look at our Fundraising Stars page to get some ideas

Call Ann on 0845 803 1004 or email to discuss your ideas and request a fundraising pack

Visit our JustGiving page and set up a page for your event

Tell your friends and family about your fundraising for the Dystonia Society and ask them to sponsor / support you