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TOPIC: DBS for cervical dystonia

DBS for cervical dystonia 1 year 4 weeks ago #4104

I had DBS surgery on 7 Dec and am recovering well from the procedure. The stimulator has not yet been switched on. However, my dystonia symptoms have significantly worsened since surgery - particularly neck tremor while seated. Also, my head and face feel numb and pulsing, also while seated. I have noticed that the head symptoms seem to worsen following alcohol. Is anyone reading this familiar with DBS and the early effects to advise me?
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DBS for cervical dystonia 10 months 1 week ago #4134

  • KeithS
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Sorry to hear that your symptom have got worse. I'm seeing my consultant in 2 weeks to discuss surgery. How have the last couple of months since surgery been? Have you noticed a positive change since your switch on?
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