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TOPIC: TMJ treatment for Blepharospasm and Torticollis

TMJ treatment for Blepharospasm and Torticollis 1 year 5 months ago #4016

  • youster
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Hi Ian

Thank you. I would be interested in your progress.

Yes, I agree with you; medicine has changed over the years (fortunately). Family, friends and work colleagues are now commenting on the difference in how I am holding my neck and that I am not continually blinking. I hope it will be the same for you.

Kind regards
Liz
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TMJ treatment for Blepharospasm and Torticollis 1 year 5 months ago #4017

  • Amanda6
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Hi Youster,
I had an MRI of my TMJ at the London Imaging centre, and my discs are quite badly displaced, as I have Wilkes stage 3 - 4. I have been told that I would need surgery on my TMJ to reposition my discs, as they are too displaced for a splint to be able to help.
Do you know what Wilkes stage your TMJ is, as shown in your MRI, and will you be needing surgery on your TMJ?
Last Edit: 1 year 5 months ago by Amanda6. Reason: incorrect spelling
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TMJ treatment for Blepharospasm and Torticollis 1 year 5 months ago #4018

  • youster
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Hi Amanda

My MRI showed Wilkes stage 5 on the right and relatively normal on the left. Surgery has not been suggested so far.

Kind regards
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TMJ treatment for Blepharospasm and Torticollis 1 year 5 months ago #4019

  • Amanda6
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Hi Youster,
Thank you for replying. Do you know if your displaced disc is expected to reposition with the splint?
Do you have any other symptoms due to your displaced TMJ disc, such as limited jaw opening? Has your splint helped with jaw opening?
I hope it continues to help you.
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TMJ treatment for Blepharospasm and Torticollis 1 year 5 months ago #4020

  • youster
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Hi Amanda
I have had a number of symptoms over the past few years such as:
eyes sensitive to light, eyes blinking, eyes wanting to shut, inability to hold head up straight, head wanting to twist to the left and also to my chest, unable to breathe if food/drink went down the wrong way, unable to put chin to chest (feeling is if something was obstructing the path), difficulty talking if looking straight down, aching in various parts of the throat/neck area, dizziness, poor balance.

When I started treatment, my open jaw span was 42mm, now it is 50mm. The splint has helped my jaw to unlock. I assume by doing so, the disc will be re-positioned.

Thank you - I feel a lot better already.

Hope the above answers your query.

Kind regards
Last Edit: 1 year 5 months ago by youster.
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TMJ treatment for Blepharospasm and Torticollis 1 year 5 months ago #4021

  • Amanda6
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Hi Youster,
Thank you for your reply. It's helpful to know that the treatment can help with symptoms, without needing TMJ surgery.
Do you know where your right disc was positioned when your jaw was closed and open, when you had your MRI?
As your right side is worse than your left, is your lower splint built up higher on the right than on the left side to help decompress your right side?
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