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TOPIC: TMJ treatment for Blepharospasm and Torticollis

TMJ treatment for Blepharospasm and Torticollis 1 year 5 months ago #4023

  • youster
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Hi Amanda

It's over 15 months since I had my MRI scans and had the results explained so I don't really remember. I wouldn't want to give you inaccurate information but, looking at my notes, I think my right disc was anteriorly displaced.

Regarding the lower splint; you'd think so but, funnily enough, my splint doesn't look or feel bigger on the right.

Kind regards
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TMJ treatment for Blepharospasm and Torticollis 1 year 4 months ago #4030

  • PHARMALIE
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Hi Liz,
Hope all is well with you. I said I would update you with progress so here it is. I have had fillings replaced and by the end of the month will have a gold filling in my back molar. Andre recommended this material because it will last 15-20 years. The white composite only lasts 5-7 years and the back molars take most of the stress so the gold costs more but lasts a lot longer. The next step was to have a MRI scan at the London Imaging Centre but because I have had DBS the electrodes in my brain would fry if I had a MRI scan so I am now going to have a CAT scan instead. I have also been contacted by the massage person who specialises in the dystonia field. So once I have seen the podiatrist and had the massages the orthodontic work can begin. I am interested if this is the same procedure that you have had? Also as a ballpark figure I would like to know how much money this is all going to cost me and how successful the results can be? My guess is £12/14K!

Kind Regards,

Ian
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TMJ treatment for Blepharospasm and Torticollis 1 year 4 months ago #4031

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Hi Ian
Good to hear from you. There are a few differences (I didn't have any fillings) but the rest of your proposed treatment sounds similar.

I had an MRI scan and, I think, x-rays at the London Imaging Centre. I also had extensive tests (computerised) at Andre's practice and I have been seeing the Podiatrist and have special inserts for flat shoes. I wasn't contacted by the massage specialist but I haven't been in a lot of pain with my Dystonia. However, I do have a massage once a month (locally) and it was recommended that I take up Pilates to strengthen my body core.

I think your estimate is probably very accurate when you take into consideration the costs of all tests etc.

I am still receiving treatment but the results to date have been remarkable. When I first saw Andre, I couldn't hold my head up and straight for any length of time. It kept wanting to look at the ground and twist to the left; those symptoms have totally gone. Another symptom was that my eyes kept blinking and wanting to shut; I no longer have to keep closing my eyes and I have been told that my blinking looks normal. My neck used to feel as if there was an obstruction which prevented me from looking downwards; this has also gone.

I still have a few symptoms but I am hopeful that these will improve further.

Even if I do not return completely back to 'normal', I feel as though I have got my life back.

Kind regards
Liz
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TMJ treatment for Blepharospasm and Torticollis 1 year 4 months ago #4032

  • PHARMALIE
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Hi Liz,
I have just returned from the Podiatrist in Dorking and I am pretty sure that he can help me. The problem I have is that I have had Cervical Dystonia (and well controlled Myoclonic Dystonia) for about 28 years. So my hips/legs and feet are out of alignment and there is a lot of work to be done. Unfortunately the gold casting was not ready at the dentist and I will have to combine getting the dental work done with my next visit to the Podiatrist. I am still optimistic that I will get a good result but I haven't had any :cheer: orthodontic work done yet. However I have been biting hard on the splints and practising opening my mouth as wide as possible and I had a really good day on Saturday so I think I am seeing a result already. I am taking this one step at a time so time will tell.
Kind Regards,
Ian
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TMJ treatment for Blepharospasm and Torticollis 1 year 4 months ago #4035

  • Amanda6
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Hi Youster,
Thank you for your reply about your splint. I hope it continues to help you.
Are you having treatment with Andre?
I had treatment with him, and it didn't help my TMJ symptoms, as my symptoms all returned as soon as the lower splint had to be removed at the end of the orthodontic treatment. I also don't really understand what the purpose of the orthodontics was, as it doesn't seem to have achieved anything useful.
I am currently trying to find another dentist who is good at doing the splint part of the treatment to align my jaw and TMJ properly to help alleviate my TMJ symptoms.
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TMJ treatment for Blepharospasm and Torticollis 1 year 4 months ago #4036

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Hi Ian

Pleased to hear that things seem to be improving for you; and hope it continues to improve. My symptoms declined gradually over a period of time rather than immediately. Very pleased to hear about Saturday.

Kind regards
Liz
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