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TOPIC: Locating Botox treatment

Locating Botox treatment 5 years 5 months ago #1181

  • Oddbod
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Hi

This is my first visit to the site. I have recently been diagnosed with meige syndrome, facial dystonia although I have had the symptoms for 12 months plus.

The neurologist at the LGI has recommended botox as different medication has been unsuccessful.

Unfortunately the only doctor at Leeds who provided the treatment has just retired.

I am trying to locate where I might be able to source this treatment and any suggestions would be most welcome.

I am more than happy to travel as my life is a misery.

Any help would be most welcome.

Best wishes

Andy
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Re: Locating Botox treatment 5 years 5 months ago #1182

  • Bernie.McMahon
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Hi Andy

You can contact our Helpline on 0845 458 6322 or email This email address is being protected from spambots. You need JavaScript enabled to view it. to ask them about this.
Dystonia Society Administrator
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Re: Locating Botox treatment 5 years 5 months ago #1183

Hi Andy,

Welcome to the Forum. I thought you might be interested to know that we have a support group which meets every few months in Leeds specifically for people who have eye dystonia (blepharospasm) or meige syndrome. You can find information on the Northern Blepharospasm Group here: www.dystonia.org.uk/index.php/living-wit...-blepharospasm-group

All the best

Chris
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Trust Fundraiser & Communications Manager @ The Dystonia Society
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Re: Locating Botox treatment 5 years 5 months ago #1184

  • Oddbod
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Thank you for your messages had a frustrating day on the Internet contacting different area nhs but with no success whatsoever in the end I have written a further plea to my neurologist for some help and guidance, it doesn't seem good enough just to say no one in Leeds does this procedure.

I thought I would easily access a specialist
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Locating Botox treatment 1 year 1 month ago #4090

Thanks Bernie.McMahon!
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