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TOPIC: Voluntary contortions to relieve pain?

Voluntary contortions to relieve pain? 1 year 7 months ago #3964

  • jlmitch12
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First off, my diagnosis of Dystonia is both secondary and questioned (I'm a medical enigma who leaves specialists disagreeing with each other, though overall they agree my main diagnosis is autoimmune disease with neurological conditions being secondary). My convulsions and contortions affect my entire left side, but I'm posting in the neck forum because for over a week I've been experiencing a sharp pain, similar to a pinched nerve, in my neck. I thought I slept on it wrong, but it hasn't gone away. What bothers me is that voluntarily contorting my head to the side, the way it does when I'm having an episode, relieves the pain, but it comes back when I straighten my neck, and the fact it's going on so long is starting to concern me. Is that something anyone else has experienced? Is that how the permanent contortions ever begin? I hadn't had a full storm any time around when the pain started (so a pulled muscle or pinched nerve seems unlikely). I've lost my insurance, and therefore cannot see my neurologist anymore, otherwise I would just discuss it with him. Since I can't, any input on the subject would be very appreciated. And I'm aware that since autoimmune disease is the main culprit in my case, my experiences could vary greatly from what's sort of the "norm" here (if there is such a thing, right?) but I'm flying in completely unknown territory, so any landmarks, no matter how far in the distance, would be reassuring. Thanks for reading!
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Voluntary contortions to relieve pain? 1 year 6 months ago #3987

  • Supergran
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I have just recently been told I have a problem with the ocipital nerve at the top of my spine which gives me pain and trapped nerve sensations. I am booked for a scan to see what is going on, Good luck with finding out what is causing the problem.

Christine x
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