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TOPIC: A 'Backwards' Case of Dystonia?

A 'Backwards' Case of Dystonia? 1 year 8 months ago #3929

  • rka
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Dear Lorensul, Dawnapollonio, Jlees and Island healer,

I wondered if you would mind some more questions - Do you find that all your muscles are automatically taut ( I wondered if they are fighting the relaxation which of course brings on the dystonic spasms.) Do you find it causes exhaustion, increasing as the day wears on? Do you find regular eating helps to keep up the drained energy levels? Finally has your inverse/backwards dystonia been recognised as a different form of dystonia by your consultants? It would be so useful to know how many cases/or what proportion of cervical dystonia takes this 'reverse' form.

Thank you for all your comments. It is so helpful to know of others so that when you describe your symptoms you are believed.
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