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TOPIC: Hi everyone, just diagnosed, help :(

Hi everyone, just diagnosed, help :( 2 years 2 months ago #3761

  • Nic4021
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Hi everyone. After years of tests, I was finally diagnosed last week with primary generalised dystonia with dystonic tremor. I've always been a strong person but there seems to be so much to take in. I feel scared and alone :S
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Hi everyone, just diagnosed, help :( 2 years 2 months ago #3766

  • Hannah.Prime
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Hi,

We have a helpline that can give info on dystonia and support if you'd like to talk. It's open Mon-Fri 10am-4pm and you can call them on 020 7793 3650 or email This email address is being protected from spambots. You need JavaScript enabled to view it.

Hannah Prime
Trust Fundraiser - The Dystonia Society
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Hi everyone, just diagnosed, help :( 2 years 2 months ago #3768

  • Nic4021
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Hi Hannah, thank you so much for your reply. I phoned the helpline and they were brilliant, so helpful and supportive. They're posting information, leaflets, wallet size cards, etc and I've been going through things on the website. It's so good to know there is support and someone to talk to that understands and I'm not alone.

Thank you
Nick
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