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TOPIC: New diagnosis

New diagnosis 8 months 1 week ago #4149

  • Pudding
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I started with dystonia exactly a year ago today which was a scary experience !!! I was diagnosed in February this year and started on trihexiphenidyl which I have now decided to stop taking as it is making me so ill, I have had Botox in my neck but recently I am having spells where I lose power in my leg and it tremors when walking. Does anyone have any similar experiences and the best plan to help with this
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