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TOPIC: Introduce Yourself

functional dystonia 1 year 10 months ago #3873

Hi Sue,
I have also been diagnosed with functional dystonia. The more I read about it, the more confused I become!
It is certainly not all in your mind.
Get in touch for a more in depth chat if you like.
Kat (flashkitten55)
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Introduce Yourself 1 year 9 months ago #3882

  • Helen46
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Hi, i am new to forums so forgive me if i post in the wrong way! All navigating advice welcome!
I was lucky to get a spot at a recent dystonia event at Burghfield common. But still at bit lost in the diagnostic/referral process. I am going to get in contact with the helpline again but difficult as i cant answer whilst at work.
best wishes to all
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Introduce Yourself 1 year 9 months ago #3916

  • Janeycat
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Welcome Helen! I hope you find you way soon. It really helps to talk to the helpline if you can sneak some time in. They have good ideas and are kind and try to help as much as they can.
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Introduce Yourself 1 year 8 months ago #3922

  • KeithS
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Hi, I'm Keith, I have cervical dystonia and I'm in the North west where we're fortunate enough to have great clinicians and plenty of help on hand.
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NEW MEMBER 1 year 5 months ago #4003

  • SALLYW
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B) :sick: :sick: HI I HAVE JOINED TODAY, AND I HOPE THAT I CAN FIND THE SUPPORT HERE.

I HAVE BEEN ILL FOR SEVERAL YEARS , & ONLY AFTER MY HUSBAND PUSHING THE DOCTORS HAVE I BEEN GIVEN THE DIAGNOSIC OF TARDIVE DYSTONIA.

I HOPE THAT I WILL HEAR FROM SOME OF THESE MEMBERS .

THANKS. SALLY
SALLY J WILDE
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Introduce Yourself 1 year 2 months ago #4080

  • dkzep
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Hi Steph,

I am a new member. I have Focal Hand Dystonia (right) - not good for a classical guitar player.

I read your post about Milk Thistle. I have started to take capsules. I was curious if you (or anyone here) has know of someone with my condition who's status was improved with Milk Thistle. I'm hoping to see results that resemble those you experienced with your eye dystonia.

Best,
D
Last Edit: 1 year 2 months ago by dkzep. Reason: horrible grammar
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