We heard recently, with great sorrow, that Dr Ginger Butler had died following cardiac surgery. Dr Butler was one of the founders of Action for Dystonia, Diagnosis, Education and Research (ADDER) and was well known in the dystonia community especially for his work on epidemiology.

Neurological Voices is a programme in Scotland which aims to help you have your say on your local health services

There are still a few places available on the Bristol, Glos & Somerset Dystonia Society Group day out on the West Somerset Railway. Book now! Call 0845 899 7113 for details.

Awareness Week is here! From 5th - 13th May we are looking for you to raise awareness of Dystonia in any way you can!

Dystonia Europe has launched a new Facebook page where you can follow their work influencing decision makers across Europe.