Numerous people with dystonia have told us the difficulties they had getting a diagnosis – so about 18 months ago we set up a campaign to raise awareness of dystonia among the undiagnosed. Our goal was to halve the time to diagnosis over a 5-year period.
The results have exceeded all our expectations – and we now have 125,000 people per year visiting our website through researching symptoms! There are some promising signs that diagnosis times may be improving.
UCL Department of Brain Repair and Rehibilitation and Movement for Hope, a new organisation that utilises the arts to raise support for neurological conditions, are hosting an evening of art, science and innovation.