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One of the findings of our treatment questionnaire was that ongoing treatments, such as toxin injections, are very helpful but on average only mitigate around 50% of symptoms and in some cases only provide very limited relief. Given this, a more holistic approach to coping with dystonia is needed. It has been shown that coping with long- term conditions such as dystonia can be greatly helped for many people by looking at how the condition can be actively managed. To help with this, we have piloted a self-management roadshow in North West England and Scotland. The Roadshow has now expanded and is visiting more locations in the United Kingdom.

Dystonia Self-Management Roadshow: Learn to manage life with a long term chronic condition

Self management techniques can help you:

  • Feel confident, balance and more in control of your life with dystonia
  • Manage your condition and treatment together with health professionals
  • Be realistic about the impact of your condition on both yourself, your family, your friends and your work colleagues
  • Use your new found skills and knowledge to improve your experience of living with dystonia 

Note:The Dystonia Society operates a confidentiality policy to ensure information provided to us will be used solely for the purpose for which it is given and be kept confidential within the organisation. However, the Society may disclose information to the appropriate authorities without permission where it has a reasonable belief that there is concern that the health and safety or welfare of an individual is at risk.

England

Upcoming Workshops

Please note these dates are still provisional.

Title Date/Time Location  

Combined Workshop 1 & 2 will take place at Furness & South Lakes Living with Dystonia Event

Workshop 1: Managing Dystonia

Workshop 2: Emotional effects of living with a long-term condition
17/10/2015 Michaelson House, 45-47 Fairfield Lane, Barrow-in-Furness, Cumbria, LA13 9AN This event has already taken place.

For more information on the Roadshow being run in England please contact Angie Brown on 0845 899 1041* or email selfmanagement@dystonia.org.uk

*Calls cost 5p per minute plus your phone company's access charge.

Scotland

Upcoming Workshops

Title Date/Time Location  
Workshop 2: Emotional effects of living with a long-term condtion 

20/08/2015

1pm - 4pm

AK Bell Library, York Place, Perth, PH2 8EP This event has already taken place.
Workshop 2: Emotional effects of living with a long-term condtion

23/09/2015

1pm - 4pm

Art Centre and Theatre, 33 King Street, Aberdeen, AB24 5AA This event has already taken place.

For more information on the Roadshow being run in Scotland please contact Dorothy Chisholm on 0845 803 1006** or email dorothy@dystonia.org.uk

**Calls cost 3p per minute plus your phone company's access charge.

 

 

 

 

 

 

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