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The project will pilot a 3-day residential course targeted at helping people with dystonia cope with the condition. The courses will be for 12 people and will address concerns such as loss of independence, isolation, stress, anxiety, sleep and managing pain.  The course and will be led by a psychologist, Dr Harbinder Sandhu and will also involve experts in pain and mindfulness. There will be sessions around cognitive behavioural principles of coping with long term conditions as well as sessions looking at using mindfulness (meditation) to help cope with stress, anxiety and pain.

The pilot will take place later this year and participants will be recruited from clinics in Coventry. The aim is that, if participants find that this is a plausible programme which has benefits, further funds will be sought to do a large research trial with an aim to test the short and long term outcomes and impact of the programme.

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