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Please see the main page on the Dystonia Management Roadshow for more up to date information.

One of the findings of our treatment questionnaire was that ongoing treatments, such as toxin injections, are very helpful but on average only mitigate around 50% of symptoms and in some cases only provide very limited relief. Given this, a more holistic approach to coping with dystonia is needed. It has been shown that coping with long- term conditions such as dystonia can be greatly helped for many people by looking at how the condition can be actively managed. To help with this, we are piloting a self-management roadshow.

We will run 4 different workshops: 

  • Overview of managing dystonia / getting the best out of treatment
  • Understanding how physical and emotional symptoms inter-relate
  • Physiotherapy / Pain management
  • Daily life strategies / negotiating support

Each workshop will be standalone so participants can select the ones they find useful – there is no need to attend them all.

The next scheduled sessions are:

North West England

October 19  Liverpool ‘Dystonia management overview / getting the best out of treatment’  Click here for location details

November 2  Leeds ‘Dystonia management overview / getting the best out of treatment’      Click here for location details

To book please contact Gladys; email support@dystonia.org.uk or call 0845 899 1041 or book online here.

Scotland

November 16  Perth, 12pm-3pm  Click here for location details

To book please contact Dorothy; email dorothy@dystonia.org.uk or call 0845 803 1006 or book online here.

 

 


Venue Information


Liverpool Venue:

Neurosupport

Norton Street

Liverpool

Merseyside

L3 8LR

 

Leeds Venue:

Mill Hill Chapel

Lower Basinghall Street

City Centre

Leeds

LS1 5EB

 

Perth Venue:

A K Bell Library

York Place

Perth

PH2 8EP

 

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