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We need your help. Please tell us how you manage your dystonia. 

  • In what ways does dystonia affect your daily living?
  • How is your communication with medical professionals?
  • Do you have tips for others about coping?

A new Dystonia Society support group has been launched on Facebook for people affected by dystonia in Scotland.

The Dystonia Self-Management Roadshow is expanding and visiting new locations including Maidstone, Brighton, Oxford and Aberdeen!

The Neurological Alliance has launched its inaugural neurological patient experience survey. Closing date 15th September.

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