This briefing provides guidance on how to go about setting up a new Dystonia Society Support Group.
Thank you for your interest in starting up a new Dystonia Society Support Group. We are delighted that you are interested. We believe that local groups are extremely important in offering support to people affected by dystonia and we could not do this without the help and support of our network of groups throughout the UK.
Groups and group volunteers are a vital part of The Dystonia Society. They are the public face of The Society locally. Groups raise The Society’s profile and some raise substantial cash to help provide our services. They offer a place for local support for those affected by dystonia and help to shape The Dystonia Society’s policy throughout the UK. They are also instrumental in affecting local awareness and services including diagnosis, treatment & services.
Groups can come in all shapes and sizes – they can be large or small - they can meet frequently or as little as twice a year – they can choose to handle money or not. Our aim is flexibility so that the diverse needs of members can be met.
Despite the differences there are some things we need to consider and agree on before setting up a new group. The importance of local groups cannot be overemphasised. This is why groups need to be run efficiently, effectively and in a friendly manner.
Who can become a group?
In the first instance the thing all groups must have in common is that they want to support The Society and each other. In addition, for The Society to consider developing a group they must be satisfied that:
If you can answer yes to these questions and would like to start a new group then please contact Group Support & Development on 0845 458 6211 or by email at firstname.lastname@example.org to move on to the next stage which is…
Becoming a group
Once it has been agreed that a group is viable the minimum requirements to become a group are that the group must:
For groups that can meet the above requirements then an agreement will be prepared, signed and reviewed as required. By signing the agreement support groups become affiliated to The Society and have access to the support offered by The Society to support groups operating under the auspices of The Dystonia Society. These are:
Remember if you would still like to discuss the possibility of setting up a new Dystonia Society Support Group in your area please contact Group Support & Development on 0845 458 6211 or by email at email@example.com.