The Dystonia Society is managed by its board of trustees. Currently there are eight trustees and all are affected by dystonia.
Trustees plan the strategic development of the Society and are responsible for policies and work of the organisation. They have a range of business, financial and management experience.
Trustees are elected by the members of the Dystonia Society and serve a maximum of three years after which time they must be re-elected. If you are interested in becoming a trustee, please contact the Society for further information.
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Joanna Atkin (London) - Chair |
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Roger Edmonds (West Midlands) - Vice Chair |
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Mike Newbigin (London) - Hon. Treasurer |
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Shona Baxandall (Herefordshire) |
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Nirmaljit Gill (West Midlands) |
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Penny Ritchie Calder, MBE (London) |
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Alec Sandison (Devon) |











